Today I got a bunch of my medical records from the hospital. The trick is for me to try to make that interesting for you. I'm not sure I can pull it off. Maybe I should leave out the jargon and go directly to the point.
I found out the name of the doctor who treated me like a dirty dish rag. Oops! Not even that good. He treated like I was something floating in his toilet that he wanted to get rid of. After plunging he finally flushed me away.
Nope that won't work. Let me go back to the drawing board. I sounded too whiny there.
I need to see the pulmonologist (a doctor who possesses specialized knowledge and skill in the diagnosis and treatment of lung conditions and diseases). The medical records raise some questions. OK - I am grasping at straws. But I am not getting my hopes up.
There was the point where the records said the fibrosis was getting better. (There was also a new report saying it was worse.) My impression has been it never gets better. There was the page that was calling it something other than pulmonary fibrosis. There is the fact that none of the records use the word (idiopathic - self-originated; occurring without known cause).
Let me think. I agree that wasn't exciting. Nothing about this thing is exciting and I sure can't make a silk purse out of a sow's ear. The problem is I want to reach some people who have an interest in this disease and I need to figure out a way to do that. My son said to make it more personal. (Yep, I am a single dad of a 17 year old.) I think he is right, but how can I make medical records personal as well as interesting. Impossible, right?
Maybe the bottom line here is hope - not false hope. I mean just good old fashioned hope. I hope that I get better or just even hang around on the planet for awhile longer. Does that seem reasonable?
Yeah, I think it does.
No comments:
Post a Comment